Posted on: Tuesday 19 December 2017
Today, Tuesday (19.12.17) Torfaen council became the latest council in the UK to sign the Motor Neurone Disease (MND) Charter.
By adopting the MND Charter, the council is agreeing to promote the Charter and make it available to all councillors, council staff, partner organisations and health and social care professionals who deliver services for the council.
Leader of Torfaen Council, Cllr Anthony Hunt said: ‘We will raise awareness of MND and what good care looks like for those living with this devastating disease, as stated in the Charter, and do everything we can as the council to positively influence the quality of life for local people with MND and their carers living in our community.
‘It is important that councillors, staff and those working with the council understand the needs of people with MND and their carers which will help achieve better outcomes for local people living with the disease.
‘We expect the adopting of this MND charter to be the first step in a lasting relationship with the council.’
Cllr Giles Davies whose father died this year from MND and who brought forward the motion said: ‘My father passed away only 21 days after being diagnosed with MND. I didn’t know who to talk to, who could help, what to expect or how to be prepared.
‘What I learnt very quickly is that there are significant differences in the quality of services available to people with MND locally, depending on where they happen to live.
‘Many decisions about services used by people with MND, such as social care, housing adaptions and support for carers, are made at the local level by the council and as such, it is important that councillors, and all those working for and with the council, have a better understanding of the needs of people with MND and their carers’.’
The MND Charter is made up of 5 points:
1. The right to an early diagnosis and information
2. The right to access quality care and treatments
3. The right to be treated as individuals and with dignity and respect
4. The right to maximise their quality of life
5. Carers of people with MND have the right to be valued, respected, listened to and well supported.